The Defiant Truth
The flagship long-form piece. Personal, provocative, and deeper than the public version.
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THE DEFIANT QUESTION · THURSDAY
When capacity changes, honoring an old promise may mean renegotiating it before denial makes somebody else pay.
Read the premium article ↗The Defiant Few is bigger than Parkinson’s. It lives at the intersection of chronic illness, identity, absurdity, psychology, loss, disability, relationships, anger, aging, medicine, mortality, and the occasional joke that has absolutely no business being funny.
These are not reheated Facebook posts behind a paywall. This is original work, access to the thoughts that are too complicated, uncomfortable, or personal for the public feed—and a private Facebook group where members can talk to one another without explaining the brochure version first.
Original writing, honest conversation, Ask Richie, and occasional surprises. Enough value to matter without turning membership into another unread inbox.
The flagship long-form piece. Personal, provocative, and deeper than the public version.
The realities polite conversations avoid: sex, resentment, dependence, medication, fear, and dignity.
Stories and journal-style reflections drawn from more than three decades inside Parkinson’s.
One question worth answering together. No small talk and absolutely no ‘How are you?’
Dark observations, satire, fake warnings, cartoons, and symptoms too ridiculous not to use.
Dark observations, fake pharmaceutical warnings, ridiculous symptoms, and satire from someone who has lived long enough with Parkinson’s to know the fine print is lying.
“Side effects may include sudden wisdom, inappropriate dancing, and the uncontrollable urge to explain dopamine to strangers.”
When capacity changes, honoring an old promise may mean renegotiating it before denial makes somebody else pay.
Read this release ↗The PRKN result answered why Parkinson’s found me—and turned one man’s medical history into family information.
Read this release ↗When treatment gives part of your life back, the system can make using that life feel like a threat to the care that restored it.
Read this release ↗When illness gives you an audience, changing the subject can feel like betrayal—even when the change is how you take your identity back.
Read this release ↗Nothing improves Parkinson’s faster than the arrival of the one person you desperately need to see it misbehave.
Read this release ↗Chronic illness can make plans unreliable without making the friendship unimportant, but keeping the connection alive cannot become only one person’s job.
Read this release ↗A crisis has an alarm, a role and an ending; chronic illness asks for a quieter kind of courage that may never hear the all-clear.
Read this release ↗Chronic illness can make a relationship excellent at managing needs while quietly forgetting to remain curious about the person who has them.
Read this release ↗Being correct can become a way to avoid being vulnerable, and victory is expensive when the relationship has to pay for it.
Read this release ↗Being known can become its own kind of loneliness when the people closest to me are still navigating by a version I no longer inhabit.
Read this release ↗Please remain on the line while your tremor, fatigue, bladder, mood, blood pressure and swallowing problem are transferred to six different departments.
Read this release ↗Keeping painful truths from the people I love can spare them fear, but it can also steal their right to decide what love requires.
Read this release ↗Dopamine-agonist withdrawal pushed me into psychiatric care and taught me how quickly medicine stops looking like medicine when the injury becomes psychological.
Read this release ↗The people who love me deserve relief from the work of illness; the part nobody says aloud is that their necessary rest can feel like rejection when I cannot leave the body creating the work.
Read this release ↗When illness changes what I can do for other people, reassurance cannot fully replace the dignity of still having something to contribute.
Read this release ↗Life rarely announces an ending while it is happening; most final moments acquire their meaning only after we can no longer return to them.
Read this release ↗The disease entered without permission; the care needed to live with it may have to wait while strangers review the paperwork.
Read this release ↗Illness may affect everyone in the room, but that does not automatically give everyone the same claim to the patient’s private information.
Read this release ↗A diagnosis, a law degree, a career, books, testimony and a public voice can describe my life without answering who is living it.
Read this release ↗Praise can sound kind while quietly revealing how little the world expected from a disabled person.
Read this release ↗Parkinson’s gave me a fictional rival: the healthy father I imagine my children should have had, a man who never had to survive a single real day.
Read this release ↗Changing my mind can feel like betraying the person I used to be, even when that person was wrong.
Read this release ↗The internet has created the world’s fastest neurology clinic, staffed entirely by people who begin with ‘not medical advice, but.’
Read this release ↗Illness can shape behavior and shrink capacity, but it cannot require the person who was hurt to stop being hurt.
Read this release ↗Passing the bar proved Parkinson’s had not stopped me; it did not mean the career I fought for would become the career I imagined.
Read this release ↗When the future contains unknown costs, spending money on an ordinary pleasure can feel like stealing from the person I may need to become.
Read this release ↗We praise perseverance so blindly that people can spend years proving loyalty to goals, identities and versions of life that are already gone.
Read this release ↗Regret becomes cruel when the person I am now prosecutes the person I was using knowledge that arrived only after the choice was already made.
Read this release ↗Chronic illness does not merely change what a man can do; it exposes how much of manhood was being rented from strength, independence, earning, sexual confidence and silence.
Read this release ↗Concern can protect a disabled person from harm, but when safety becomes the only value in the room, protection starts quietly repossessing the life it claims to preserve.
Read this release ↗Vyalev changed my movement dramatically, but a body that becomes more available does not automatically know how to rebuild the life shaped around its absence.
Read this release ↗Apathy can leave my values intact while disconnecting them from the internal ignition that turns caring into action.
Read this release ↗A diagnosis can shape almost every chapter of a life and still have no right to claim authorship of the whole story.
Read this release ↗Nostalgia can make a lost relationship feel sacred, but missing what existed does not mean it belongs in the life I have now.
Read this release ↗Medicine can measure what malfunctions, but somewhere between diagnosis and treatment the person can start feeling like defective equipment with excellent paperwork.
Read this release ↗Organizations can amplify an advocate’s voice, but amplification is not freedom when the sentence that most needs saying must first survive somebody else’s comfort.
Read this release ↗I was diagnosed before the law degree, the courtroom, the testimony, and most of my adult identity; Parkinson’s was present during the construction, but that does not make it the architect.
Read this release ↗Dependence creates an emotional economy where gratitude, guilt, resentment, and power begin trading places before anyone admits a transaction occurred.
Read this release ↗The world is comfortable with sick people until our honesty stops being pleasant; then suddenly the disease is not the problem—our attitude is.
Read this release ↗A person can remain in your life long after the relationship between you has quietly disappeared.
Read this release ↗After thirty-five years of missed deadlines, unauthorized movements, and hostile takeovers of ordinary tasks, management has finally scheduled a meeting.
Read this release ↗Refusing to discuss death may feel protective, but the silence often serves the people who are afraid to listen.
Read this release ↗DBS changed what was possible for me in 2008; now it sits switched off while I live inside a body transformed again, this time by Vyalev.
Read this release ↗Chronic illness can complicate sex without canceling desire, privacy, adulthood, or the right to be wanted without becoming somebody’s lesson.
Read this release ↗Some of the walls people admire as resilience were built because needing anyone started to feel more dangerous than being alone.
Read this release ↗Not every act of survival looks brave. Sometimes it looks like waking up, telling the truth, and refusing to disappear from your own life.
Read this release ↗After thirty-five years in a loyalty program I never joined, I would like to know where the hell they are hiding the complimentary upgrades.
Read this release ↗An unpredictable body can change the answer without making the original yes a lie.
Read this release ↗I spent years turning Parkinson’s into testimony, speeches, jokes, and stories—but sometimes I wonder what happens to a life when you become too damn good at explaining it.
Read this release ↗Needing help is hard enough without feeling like every act of kindness comes with a quiet demand to become easier, nicer, and less complicated.
Read this release ↗I don’t want anyone else’s life. Sometimes I just want the freedom they don’t even realize they have.
Read this release ↗
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